As this weekend approaches and they
kick off the Keith LeClair Invitational Tournament, with ECU, Clemson
and Georgia Southern, I can honestly say I really didn't plan on being
around to see it. But through the blessing of God, I will be reunited
with some of my closest friends and my mentor, Jack Leggett. Without
Coach Leggett, I probably never would have gotten the chance to play
college baseball and certainly not have coached the game of baseball I
love so much.
I had the greatest job in the world
guiding the Pirates baseball program for nearly five years before ALS
hit me like a ton of bricks. I can remember my last game in a Pirates
uniform like it was yesterday. Of course, how could I ever forget the
Pirates fans jammed into Grainger stadium to see us host Tennessee in
the Super Regionals. Yes, believe it or not, that was the last time I
ever put on a uniform. Although I remained on as coach for the 2002
season, Coach Mac, Coach Eason, Coach Whitfield and Coach Loesner
basically ran the team.
I was fighting the battle of my
life, and it was one battle I was not winning. There is a moment that
year in 2002 that I will never forget. Luke Cherry had been struggling
at the plate one night and by this time in the progression of ALS, all I
could do was slur a few words that nobody could understand but myself.
So, I scribbled Luke a note before he went the plate, and wouldn't you
know, he crushed a ball in the gap for a bases-clearing triple.
That note was about the last
coaching I ever did, and less than a month after returning from the
Charlotte series, I walked into the house and about collapsed. Lynn
called 911 and I was brought to Pitt Memorial Hospital, only to stop
breathing a day later. My wife had to make a decision: let me go be
with the Lord or put me on a ventilator to maintain life. Obviously,
Lynn chose the ventilator or I wouldn't be writing this column today.
I cannot lie and say the last
couple of years has been a picnic, because it truly has been an awful
lot of work on Lynn and many friends to keep me going. I still get
frustrated at times and the ole ball coach comes out of me every now and
then, but through God's grace, he still has a purpose and plan for me.
Let me explain to you how ALS
attacks and works in a victim's body. First, ALS is better known as
Lou Gehrig's disease, which is much easier to spell than the true
spelling of ALS. It's a neurodegenerative disease that attacks the
motor neurons in the brain and spinal cord, eventually causing loss of
movement in muscles. There are two forms of ALS, one being a sporadic
form that shows up in one's body for no rhyme or reason. The other is a
formial type that is genetically linked two a sod1 gene in the body. I
personally have this kind of ALS and it has effected 16 people on my
mother's side of the family — doctors say that high of a number is very
odd.
So, there you have some medical
information about ALS. It's the best I could do. Remember, I am a
coach not a doctor.
How does ALS work its way through
the body? There really is no set pattern to this disease. Some folks
it starts in the legs, others arms and believe it or not the tongue. As
for me it started in the left arm with twitching spasms or fascilations,
whichever you prefer to call them. This went from my left arm to the
tongue, into the neck, down my right arm, and eventually all the way to
my legs.
What is odd about ALS is how fast
the progression of this disease varies from person to person. The
average life span is three-to-five years without a ventilator. I blew
this curve away, because I lived about ten months before going on a
ventilator, which again is very odd. Some people live seven-to-ten
years with ALS before passing away or choosing to go on a vent, so it
really varies from person to person.
OK, let me tell you why I chose
this article for this particular weekend. This tournament is not about
Keith LeClair, but ALS and all the people who are suffering from this
cruel disease or have lost a loved one from it. My intention for the
weekend is to bring awareness to Lou Gehrig's and hopefully inspire some
folks to donate money to help try and find a cure. We need everyone's
help in finding a cure, because research money for ALS is not heavily
funded with federal money, although it has gotten better over the last
few years. The research field is somewhat limited compared to many of
the other diseases that are out there today, because it only effects
approximately 30,000 people a year.
Anybody interested in learning more
about how you can help can find information at
www.catfishchapter.org.
This site was created for the late Jim "Catfish" Hunter in helping to
fight on behalf of the cause to find a cure for ALS. Everyone Down East
knows the battle Catfish went through in his fight against Lou Gherig's
disease, until it ultimately claimed his life.
Thanks and God bless.